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Features

Navigate

Navigate your steps for the first days, weeks or months after receiving a special needs diagnosis.

Preparation

Arm yourself with tools and encouragement to prepare for your role as a care provider.

Understanding

Understand critical emotional stages to have a better transition into special needs care.

Build Network

Learn to build the right network so that you are not parenting alone.

Knowledge

Know when to cut unnecessary ties so that your child can have the best care and support.

Ease Financial

Ease financial costs by having resources ready for scholarships or special funding that can ease financial costs.

Gain Insight

Gain insight that helps you thrive and not just survive special needs parenting.

See What’s Inside Forward

Chose a Page

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Page 1 - 4

Introduction

Take a deep breath. A big one if needed. You are entering a new world. One in which you have been called upon to care, love and nurture a child with special needs. This task, whether you feel up to it or not is rewarding and challenging all at once.

Like me, you have been chosen to be a different type of parent. What will you do with this newfound experience? Thrive or Quit? For most, it is a role that they would never choose. But what I hear from special needs parents who have been doing this a while is that even though they didn’t ask for it, they and other members of their families are better individuals because of the new direction their lives have taken.

Now, here is the reality of this new path. You will have seasons of therapy, doctor visits and many other issues that friends and family may not understand.

Sometimes you may be frustrated and tired beyond reason. You may continue to ask yourself how you got on this road. It’s the reality that you face, but things get somewhat easier and better as time passes. As challenging of a role as this is, on most days I wholeheartedly take on this journey with a big smile.

A Life Changing Event
In 2011 when we learned that our 2-year-old daughter Juliana had a rare neurological disorder, I could hardly grasp it all. It was a series of seizures that sent us to the emergency room; that visit ended up as a four-day hospital stay. We left the hospital with a tentative diagnosis that was confirmed two months later after genetic testing. At that time, our life was already full. We had been foster parents to Juliana since her birth. Due to developmental delays, we were already participating in therapy and many doctor visits. Her adoption had just been finalized three months earlier. I was eight months pregnant and had just started a new job. We were celebrating and facing shock all at once. For the health of our unborn daughter, my husband and I simply tabled the new information that we received. We didn’t schedule any additional therapies or other evaluations for Juliana right away. I didn’t panic every day or have too many meltdowns. We went on with life as usual and counted our blessings. We felt that we needed to take a moment to live where we were, and then when our new daughter was born and we were a little settled, we would deal with this new thing that we now know as Angelman Syndrome.

Transitions
The transition from there to now has not been easy. Each day is a little different and may take us somewhere we never imagined. By the same token, there are a lot of good days too. I am learning that I don’t have to have all the answers, be supermom, or get it all right; that it’s okay to make it up as I go. At the end of my story, I know it will work out just right. In the meantime, I continue to educate myself about my daughter’s diagnosis and how to make our lives better. What you experience and face day to day will look different from my life or other special needs families. When I talk to other special needs parents, I find that their story and diagnoses are different, but their beginnings sound very much like my own.

While we will all face a lot of unexpected’s and unknown’s, it doesn’t mean that we must go along lost and confused. The more I learn about what I am facing, the better I feel. Continually educating and motivating myself gives me courage and strength to forge on—to travel this path and give it all I’ve got. That is what I hope Forward will help do for you. I can’t write your story or my own, but in the following pages, I’ll offer a glimpse into new beginnings and share critical decisions and actions that will help you start your journey stronger and more encouraged.

Page 1 - 4

Introduction

Take a deep breath. A big one if needed. You are entering a new world. One in which you have been called upon to care, love and nurture a child with special needs. This task, whether you feel up to it or not is rewarding and challenging all at once.

Like me, you have been chosen to be a different type of parent. What will you do with this newfound experience? Thrive or Quit? For most, it is a role that they would never choose. But what I hear from special needs parents who have been doing this a while is that even though they didn’t ask for it, they and other members of their families are better individuals because of the new direction their lives have taken.

Now, here is the reality of this new path. You will have seasons of therapy, doctor visits and many other issues that friends and family may not understand.

Sometimes you may be frustrated and tired beyond reason. You may continue to ask yourself how you got on this road. It’s the reality that you face, but things get somewhat easier and better as time passes. As challenging of a role as this is, on most days I wholeheartedly take on this journey with a big smile.

A Life Changing Event
In 2011 when we learned that our 2-year-old daughter Juliana had a rare neurological disorder, I could hardly grasp it all. It was a series of seizures that sent us to the emergency room; that visit ended up as a four-day hospital stay. We left the hospital with a tentative diagnosis that was confirmed two months later after genetic testing. At that time, our life was already full. We had been foster parents to Juliana since her birth. Due to developmental delays, we were already participating in therapy and many doctor visits. Her adoption had just been finalized three months earlier. I was eight months pregnant and had just started a new job. We were celebrating and facing shock all at once. For the health of our unborn daughter, my husband and I simply tabled the new information that we received. We didn’t schedule any additional therapies or other evaluations for Juliana right away. I didn’t panic every day or have too many meltdowns. We went on with life as usual and counted our blessings. We felt that we needed to take a moment to live where we were, and then when our new daughter was born and we were a little settled, we would deal with this new thing that we now know as Angelman Syndrome.

Transitions
The transition from there to now has not been easy. Each day is a little different and may take us somewhere we never imagined. By the same token, there are a lot of good days too. I am learning that I don’t have to have all the answers, be supermom, or get it all right; that it’s okay to make it up as I go. At the end of my story, I know it will work out just right. In the meantime, I continue to educate myself about my daughter’s diagnosis and how to make our lives better. What you experience and face day to day will look different from my life or other special needs families. When I talk to other special needs parents, I find that their story and diagnoses are different, but their beginnings sound very much like my own.

While we will all face a lot of unexpected’s and unknown’s, it doesn’t mean that we must go along lost and confused. The more I learn about what I am facing, the better I feel. Continually educating and motivating myself gives me courage and strength to forge on—to travel this path and give it all I’ve got. That is what I hope Forward will help do for you. I can’t write your story or my own, but in the following pages, I’ll offer a glimpse into new beginnings and share critical decisions and actions that will help you start your journey stronger and more encouraged.

Page 5

A Resource for Important First Steps

No one takes a long trip without a plan of some sort and I like to view this journey in much the same way. We cannot design a perfect plan for this special needs life, but I believe there are some critical best steps to get you headed in the right direction. After reading this E-book, I hope you will be a few steps closer to feeling more prepared for what lies before you. In these pages, you will find a resource that addresses the emotional and practical side of becoming a special needs parent. Forward guides you through important actions you will want to take when you feel ready and capable to handle them.

What you won’t find is a lot of fluff and clichés. Our lives are busy enough, so I have tried to make this guide resourceful, yet short enough that it can be read in one or two short sittings. I cover five steps that will help you prepare for your new role. There is probably no single resource that will help you heal and work through what you are experiencing. Healing will be brought about through time and what you learn as you discover more about your child and his or her diagnosis.

If you’re reading this, you have already made the choice to determine how to really embrace becoming a special needs parent. And I applaud you. Taking the time to find your way will be healthier than denying that there has been a huge life changing event for you. This could be the most difficult thing you’ve ever faced. It has been for me. When you believe that you can do this, and know that your child can’t get through this life without you, it gives you strength you didn’t know you had. You’re plotting your course in a new direction, and I hope you will discover things here to make your adjustment easier.

Page 30

Forward: When Quitting is Not an Option

Moving forward in your journey, I hope you will hold strong to the “quitting-is-not an-option!” attitude. We all need motivation to keep us inspired. Inspiring quotes are an easy way to stay motivated or a quick encouragement on a tough day. Here are some favorites that I hope will inspire you.

Life is 10% what happens to you and 90% how you react to it.” Charles Swindoll

Positive thinking will let you do everything better than negative thinking will.” Zig Ziglar

No matter how good you are at planning, the pressure never goes away. So, I don’t fight it. I feed off it. I turn pressure into motivation to do my best.” Ben Carson

People often say that motivation doesn’t last. Well, neither does bathing – that’s why we recommend it daily.” Zig Ziglar

My motivation is tomorrow, just one day at a time, right?” Rafael Nadel

Optimism is the faith that leads to achievement. Nothing can be done without hope and confidence.
Helen Keller

We must accept finite disappointment, but never lose infinite hope.” Martin Luther King, Jr.

Life as a special needs parent may not be the easiest path to follow. Taking one step at a time will be better than moving as a sprinter; slow and steady wins the race. Remember that you have your Team there to support you and that you are not on this journey alone.

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Chapter Overviews

present your best book chapters

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Chapter I

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Chapter II

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Chapter III

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Chapter IV

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Reader Messages

the most inspiring testimonials from our readers

Melanie Lauren

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Joseph Monroe

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Adam Williams

Adam Williams

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Pricing Offers

special ebook package and pricing plans

Forward Ebook

$12.99

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Forward Ebook (package)

$9.99

  • discount for orders of 50+
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Forward Ebook(bulk)

$7.99

  • discount for orders of 250+
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About the Author

introducing the amazing author of this ebook

Author carreer and biography

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Personal motivations & special thanks

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